Created by Christina
"Specializing in handmade gifts created with you in mind"
This page is dedicated to a few very incredible guys. They face many uncertainties in their lives, but they are filled with strength, courage, hope and faith. Please take a moment to read their stories and keep these families in your thoughts and prayers.
MEET JAKE:
Hypoplastic Left Heart Syndrome
Jake was born on Aug. 27, 2007 with Hypoplastic Left Heart Syndrome (HLHS). He has had an unbelievable first year of life- one that can only be understood by reading his journal at www.caringbridge.org ("jacoblawson"). On Saturday August 16, 2008, Jake finally received a much needed heart transplant. Each day of Jake's life is a blessing to his mom, dad, big brother Tobin, family and numerous others who keep him close in their hearts. http://www.give-life.org/mission.html http://www.organdonor.gov/donor/registry.shtm Thank you for your prayers. Jake's turn around is not explained by medical technology or skill. Dr Gandhi says Jake amazes him with his recovery and reminds each time to pray. Thank you Lord for every minute and every breath." ~Allison, Jake's mom Congenital Heart Disease is considered to be the most common birth defect, and is a leading cause of birth-defect related deaths worldwide. 40,000 babies are born with CHD each year in the US alone. Despite the fact that CHD affects millions of families, a relatively small amount of funding is currently available for parent/patient educational services, research, and support.
"... So, please everyone remember that blood donation and organ donation saves lives! Real lives of people you know. Jake has had three transfusions this month. Thank you to the people that donated that blood. We don't know your name but you are heros for our family. Jake will need a new heart in the future and he is alive now because someone donated their organs. Jake's aorta is made of homograft. Thank you to his donor for a true gift of life!
Please pass the word. DONATE.
MEET THE HENRY BROTHERS:
Tommy was diagnosed with Friedreich's Ataxia (FA) on 
Friedreich's Ataxia is an inherited disease that causes progressive damage to the nervous system resulting in symptoms ranging from gait disturbance and speech problems to heart disease. Although rare, it is the most prevalent inherited ataxia, affecting about 1 in every 50,000 people in the
Please refer to the following sites for more details: http://www.curefa.org/
http://www.curefa.org/about/video_a.asp
Video clip from Today Show: <http://www.msnbc.msn.com/id/21134540/vp/23742905#23742905>
Quinn Murphy, J.D. is creating a fund to support research for Tommy and Christian. The fund will be used to contribute to FA research on their behalf, and fund participation in any treatments that are not covered by health insurance and are beyond the means of their parents.
To learn more about Tommy and Christian's story, please visit www.caringbridge.org and type in "tommyhenry".
Words of encouragement are welcome!
